When is a good time to take your child to an Autism Speaks event?
Posted On June 13, 2021
Annette Pearson, Autism Speak’s chief executive officer, said the organization is “firmly committed to providing parents with the resources they need to support their families” and added that parents should be able to opt out of attending their child’s Autism Speakers event.
“In the past, we have not been able to make it easy for parents to participate in our events and to participate on a personal level,” she wrote in a blog post.
“With the recent passage of the Autism Speaker bill, we are now able to provide more information to parents on what events their child can attend without their consent, and we are working to make sure they are informed about all of the activities they can choose to participate and how they can opt out.”
She also said parents should know what their options are in case they want to cancel or not attend their childs Autism Speaches event.
Autism Speakes is the only organization with the power to require parents to give their child access to their personal information in order to participate.
The organization recently began offering more information about autism and autism spectrum disorder, but said it will not be changing how it operates until its legislation passes.
“We recognize that parents have the right to choose to cancel their child(ren)s participation at an AutismSpeaks event, and that choice will be a decision that is made on a case-by-case basis,” Pearson wrote.
AutismSpeak is not the only non-profit with this ability to require access to information about children and their families.
The National Autism Association has also offered parents the option to opt-out of its annual National Autism Day.
The association, which includes many groups that help autistic and developmental children, has not yet released any specific policy, but it has released guidelines to parents that allow them to opt their children out of certain activities.
“It’s important for parents, and especially parents with young children, to know how to protect their children from potentially harmful information,” Autism Speaked said in a statement.
Autism is the most common developmental disorder in children, affecting about one in six Americans.
A 2016 survey by the National Institute of Mental Health found that around 2% of children have autism spectrum disorders, and around 12% of autistic children have intellectual disability.
The Autism Speakable Network, a non-government group that works to increase awareness about autism, released a video about autism in the U.S. in March 2017.
The group said that autism is growing at a rate of about 1.2% per year.
“A large majority of autistic individuals are not seeking treatment and are simply waiting for someone to help them,” the group said.
“Autism Speaks is not doing anything to stop this growth and the number of autistic people is on the rise.”